positive days

i have had some really good days lately. i never have days where there is no pain or some issues, but at least i can do some simple every day things. that makes me really excited!! opening soda bottles, putting on makeup and getting up without much help are just a few things that have come easier for me lately. that's a good sign right?

i need to get back to the doctors soon, it has been 3 mos since i last saw him. well that is mostly because i did not have insurance, but that all has been resolved. THANK GOODNESS. i tried my first gluten free potato chips yesterday and it was fab!!!

i started some more work with the neuro vet - working on newsletter, survey and some web stuff. i have enjoyed it tremendously. i just realized i never looked into something for him. WHOOPS.

i have a full schedule this week - work, consulting and catching up. hopefully my body will hold out to make it a good one.

maybe my lupus and ra are finally in check for a bit?

it's been a minute

since i been in the mood to post. i have felt good, knock on wood. i have learned to live with the usual pains of my diseases. better yet, i am learning to manage them. it feels good. scratch that, it feels amazing. i am slowly regaining control over this time in my life and the diseases. who would have ever thought i would -- i surely did not.

work is work, i enjoy doing it and want more of what I used to do -- web work. that too will come with time.

the girl is gone on vacation for while, so hopefully i can get some other things done. the dogs will get tons of kisses and hugs from me since i don't have the girl.

above is a picture of the puppies and momma (those who made it) that i tweeted about a few weeks ago. piggy, whiny and Micheal are all doing well (those are the names that stuck and they are all girls). cheers!

here's to better days ahead!

wow, painful

ok, so i get so tired of the new and old symptoms of my diseases, but man the backs of my knees and my elbows are killing me!!!! nothing seems to relieve the pain. soaking, pain meds, rest, rubbing and exercise have all failed me. damn!!! i had a fairly quite weekend. i caught up on season 1 and 2 of dexter. love that show!

the girl has a birthday coming up and then to the beach for a while.

i have noticed that the food thing is an issue again -- no appetite or taste for food. i do drink fluids but the food thing has gone into concern mood for me.

well off to figure out what else i can try to do to relieve the pain.. .WISH ME LUCK!!

A Lupus free moment

no post today about my icky disease, but a moment of celebration!! My daughter graduated 5th grade and it was wonderful!!! These girls have been together for a long time. the four hand signal is because they are known as the fab four. My how time flies and things change.

frustration from lack of support

i am get more and more amazed how little respect autoimmune diseases get. i mean really. most of these diseases that fall into this category are treated with chemotherapy drugs, immuno-suppressants, steroids, biologics and so many other drugs that are used to treat cancer and yet we have NO NEW advancements in MEDs in over 50 years. to say we suffer in silence is an understatement. we get the short end of the stick cause most of the time we don't look sick. but autoimmune diseases are nasty and they do kill. we need to spread the word, educate, inform, speak up and get involved. i, for one, don't want to and can't afford to wait another 50 years for a new med!! that is ridiculous. i admire what LFA and other chapters are doing and that is a great start, but so much more can be done to push Lupus and other diseases to the forefront. We need more attention in the media, we need more of a presence in the social networking aspect and we need support from lawmakers.

i am tired of not enough being done. we can and should make a difference -- our family and our future depends on it...

hmmm

so i tried to call my mom today to talk. i really need to talk. i am finding it more and more difficult to maintain. this blip in my life is becoming very overwhelming and rather difficult to stay positive. i started cracking on saturday and tried to push it back but it is right on the surface. we so need help it's not even funny and i am not sure what to do anymore, i am out of ideas. i am out of a lot of things now...