Stolen thoughts

So i took this from a fellow lupus blogger -- but have changed the responses :)

1. The illness I live with is: Systemic Lupus. I also have Rheumatoid Arthritis, Reynauds Syndrome, Vascilitis

2. The year I was diagnosed was: 2001.

3. I had symptoms since: since I was diagnosed with Lyme's disease, I never recovered.

4. The biggest adjustment I’ve had to make is: dealing with life minute by minute and try to enjoy each moment.

5. Most people assume: there is nothing wrong with me cause i don't look sick

6. The hardest part about mornings are: Continuing to move forward, hoping I can make it.

7. My favorite TV medical show is: House, for obvious reasons

8. A gadget I couldn’t live without is: no gadgets, but my dogs --

9. The hardest part about nights are: wondering if i can make it thru the night without pain, restlessness and thinking about tomorrow

10. Each day I take: the minimum 8 pills ( and that is a good day) with my Mountain Dew. Every Monday, I take my MTX injection and every other tuesday I take Humira injection

11. Regarding alternative treatments, I: don't bother.

12. If I had to choose between an invisible illness and a visible illness, I: um, neither, they both suck.

13. Regarding working and career: i am proving to myself that i can work -- that is one of the hardest, most painful adjustments I have had to emotionally deal with.

14. People would be surprised to know: that i gave up coloring my hair because of my disease-- and it takes so much energy to get up and move every day.

15. The hardest thing to accept about my new reality is: i will never get better.

16. Something that I never thought I could do with my illness that I did: have a life.

17. The commercials about my illness: are cheesy.

18. Something I really miss doing before I was diagnosed is: walking everywhere.

19. It was really hard to give up: my career.

20. A new hobby I have taken up since my diagnosis is: helping others cope

21. If I could have one day of feeling normal again, I would: taking a long walk with my daughter, husband and doggies.

22. My illness has taught me: patience and understanding

23. Want to know a secret? One thing that people say that gets under my skin is: You can't be sick or Oh I am sorry, yeah.. one of my friend's mother has lupus but she is much older. UGGGHHHHHH

24. But I love it when people: email me, call me, help me and make me giggle.

25. My favorite motto, scripture, or quote that gets me through tough times is: "There are other folks out there that have it much worse then I do."

26. When someone is diagnosed I like to tell them: Ask more questions, become more educated and don't give up.

27. Something that has surprised me about living with an illness is: how little folks know about lupus, understand and accept the new me.

28. The nicest thing someone has done for me when I wasn’t feeling well was: My friends and family have been good to me..

i feel good

but my daughter on the other hand is not. she is already over 6th grade. the past two days have been very emotional, so much so that she can't even put in to words. the only thing i get is that it is too much.

with that i say: Can I got back to that time? well, not the 6th grade. in terms of school, that was the worst time in my life. i got really sick and missed over 6 weeks of school and the doctors thought (yes people, I have had my share) I had leukemia. well it turned out to be a really bad case of mono. talk about crappy year. any way, it does break my heart as a mom to hear that, but the former student in me says -- buck up little camper, this is the easy part. so as a mom and a former student, I have to find the medium. I have told her to talk to me and let me know what I can do to make it better. no luck. this is a hard ass age. hormones all out of whack.

soccer season has begun and man this stuff keeps me busy. the coaches and everyone else has a good time while i do all the paperwork, the uniforms, the sponsorhips, the shedules, the emails, the snacks... oy!!

well my health seems to be coasting. minor little hiccups here and there, but no major flares. amen, lupus is a tricky disease and stress can send it into overdrive. don't need that....

i really wish folks would get off their ass and find a new treatment...