after a few strange calls and a few appts made with different doctors, I finally got my appt with the head of the Lupus Center at Hopkins for next week. I am relieved and not sure what to expect. but it is made and we are good to go for now. i hope to get some rest today and this weekend. I am worn down and my hands and arms are bothering me. I have one more call to make about my appt (just sure all the paper work is in place) and then all I have to do is wait for the paperwork to come in the mail and just go to hopkins. is that a light i see way way out there?