7.21.2009

finally some good new on the lupus med front

so i was glad to read on the lfa blog this great announcement - First Potential Lupus-Specific Treatment in Sight-- you can read the full announcement here --

i am excited about the possibilities!!

working a lot and that is good for my mobility. i missed my shot last night and will hope to get it in tonight. gotta go back to work

the girl is back and chilaxin (her word, not mine).

she will start participating in some pick up soccer games tomorrow night to get her back on track.

well time to find something to eat!

7.13.2009

lost a day

yesterday was a rough one. i think the sun exposure and working caught up with me and I was down for the count. I did not really move until 6 in the evening and that was very limited. that makes me sad cause i really wanted to go to the pool and hang out with friends.

it is hard on those days not to get depressed and remain positive. i struggle with that constantly. i make every effort to push forward, but days like those get me stuck.

good news, hannah is coming home and i got a promotion at work. i hope i can keep up with that cause i enjoy it even though it is hard on my lupus and ra.

well, here goes another week.

7.09.2009

ahh jeez

so i did not start my week off well, i could not take my scheduled injections b/c i was not feeling well and i did not want to risk it so i think i am going to shoot for today. the pain behind my knees are doing much better. i am having issues with my hands -- grasping and opening items. sad-- 38 years old and have issues of a much older person.

still no real luck with the job of my dreams, but still working to prove i can do it. that i can still hang with the best of them. i must keep this positive attitude to maintain my disease otherwise it all crumbles.

we have had "visitors" in the yard the past couple of weeks, several that are fine and one that caused me major distress. you guessed it a snake was taking up residence in our side yard and flower bed and no matter how much we bothered it, that damn snake kept coming back. finally my fab husband caught it and took it to the woods. i am pretty sure he will be back, he was loving life up here and the dogs did not scare him off. I HATE SNAKES. god help him if i get a hold of him.

the girl is still away enjoying her vacation!!! i miss her tremendously and so does her daddy. the puppies are pretty lonely without her pestering as well. i visited with my mom today and that was nice and I went swimming last week and that was LOVELY.

well there is my update for now.. no new news on the lupus or ra front, still hanging!