not bad for a saturday

arms still bothering me, swelling still apparent. got sick last night while at birthday party for one of hannah's friend, mike drove me home (just in time). today was another party that lasted all day. mike and hannah are still there and I am at home trying to get some house things done (it relaxes me). my back yard is still frozen and lots of ice, the dogs are having a hard time not being able to run around. got another kiddie party tomorrow - laser tag and then the super bowl. i am not looking forward to this week, too much going on and I am pretty sure another round of chemo and possibly a shot of steroids to help with the swelling. i hope the hopkins folks call soon. tired tired tired, must go to sleep now.

so aggrevated

I am so tired of being sick and stressed -- it has taken so much out of me it is sickening. How can someone who has a disease(s) and not be stressed. then add all the other crap -- work crap, home life and everyday life. STRESS makes my lovely ra and lupus go into hyper overdrive and this last week it crept back into that gear. Arms swelled and are painful again. Chest ACHES! tired. no day is ever the same except the medicine and the stress is just getting worse. something has got to give and I am so afraid it will be my sanity. I would like a vacation and for folks to back off.

friday blues

What a week. Still no word about Hopkins appt. I have a reprieve from methotrexate this week and my arms are killing me. I did not get home until after 8 last night and treated my self to taco bell.


I need to sleep, rest and not worry so much... easy to type, hard to do.

Going

crazy...

Hopkins is suppose to be in touch soon. My hands are starting to bother me again and my arms are getting bad as well. Must be the steriods wearing off.

Gotta get some rest and less stress

Trying again

So there is one thing I know for sure, I miss blogging. It was a good way option to vent about my diseases. The problem was I got so sick I could not handle blogging or even typing. Over the last 6 weeks my diseases have taken a turn and it has left my doctors shruggin their shoulders and passing me on to Hopkins. I am glad that they are but concerned and confused. God only knows when I can get in there (my doctor is facilitating that) and not sure how long I can go on with the current treatment. I have a healthy dose of immuno-suppressants that make me freak every time some one sneezes or coughs. I have begun plaqunil again but that takes so long to kick in that I won't know for a while if that helps. my major concerns is the vasculitis. That is freaking me out. They have controlled it lately with methotrexate and steroids, but man that is no fun. I am petrified once they stop it will come back. They have no idea why this has happened which leads me to believe they have no idea how to treat it long term. My blood work is not showing improvement in certain areas that seem to point to my lupus.

I am tired of worrying. I hope Hopkins can get me all sorted out like everyone seems to think they will. I can be hopeful...