soccer and all sorts of stuff

so the girls were undefeated until last weekend... well at least that makes up our mind to attend a tourney in OC in June. if we were undefeated all season, we would have passed cause we would have had to forfeit the last game.

I am doing ok. fatigue is getting better. i finally started back on humira and i think that has made a huge difference. i am bumping up the vitamin d -- 2,000 iu is not cutting it. going up to 5000 a day for now. we will see. pain has gotten more manageable (what ever the hell that means). I am putting sure folks that don't deal with what we go through on a daily basis would be crying constantly. we learn to tolerate so much with these diseases -- auto immune. no cure, no real break through in medications in like forever and yet we learn how to manage. we rely on others. we ask others how they manage and we take their suggestions and see which works best. it would be lovely if we could pop pain killers all the time but i don't think society can handle that... high as shit all the time and working and driving. my swelling has going down a bit. still don't drink water ( i really hate that shit)-- so I am strictly a mountain dew girl. god if my doctor actually knew that i think he would slam my ass in the hospital.

the girl and hubby went to a dc united game and i am home cooling in AC and doing some cleaning... fun.
Game tomorrow @130 tomorrow... WISH ASA FREEDOM good luck!!

sad girl

today was hard for me for some reason. more so emotionally then anything else. i got over the physical pain from yesterday's very long day. i really don't like to be alone and have been that way all day. still looking for that job that will fill my time and make me happy. i guess desperate is more like it.

i have been using my time with busy work, web work, part time gig (which i really enjoy) and other stuff. days like today make me really think about my disease and how at times i realize that i still have that denial that my diseases are real or that they will disappear as quickly as they appeared. i wonder if others feel that way. when does it really sink in and how do you learn accept that? i know i have it, but emotionally it plays tricks on me. i have found some comfort from reading blogs keeping up to date and twittering. sometimes i need a real person that understands, that is going through something very similar, then I think nah...

i have kept to myself, mostly out of need to deal and cope. god knows i miss folks, but this is a dark and difficult time that is far too much.

my med regime is made up of humira, methotrexate, plaquenil, folic acid, vitamin d, ultracet and the occasional steroid and painkiller. not bad considering what other folks in my same condition could be taking.

well enough of this venting, thanks for your time :)

another weekend down

not a bad one either. we had our scrimmage yesterday and the girls did pretty good for playing against a co-ed, older team. they got the practice they needed and looked like they knew what they were doing most of the time :) they score only one goal, but my girl set up the point and was excellent in all her positions. the game were canceled today and she was disappointed. we hope to do more scrimmages as the seasons moves on.

i feel good, no major FLARES. still concerning me is the vasculitis. it is appearing in larger, more painful areas of my hands and i hope i can get it resolved soon. the tingling sensation has subsided and feel my strength and stamina returning.

i am working a couple of days this week which I am excited about, my only hope is that i line something up more substantial soon.

my lupus/ra lesson of the week... things can only get better!!!